Appendix Documents
The following case scenario is used to illustrate some common issues in dementia care and to suggest ways in which the main findings of this study might be applied to support people with dementia and their carers.
Jean and Harry
Jean (61) is a retired primary school teacher who lives with her husband. Harry (67). Jean and Harry both enjoy walking. Jean likes to read and paint watercolour landscapes Harry, a retired solicitor, is also a keen walker. Not long after moving to the Lake District Jean began to have problems remembering things like names and telephone numbers. She had difficulty remembering where she had left things and was constantly forgetting her keys. At first, Harry and Jean put the memory problems down to ageing and Jean's tendency to be 'scatty' and disorganised. Recently though Jean has had more difficulty reading and she has become more withdrawn. She had always been very sociable and had many friends but now seems to be losing interest in socialising. Harry complains that she is always making excuses whenever they are invited out. Jean has become much quieter often seems to lose track of conversations. After a recent outing Jean became very distressed when she could not find her way out of the local supermarket. Harry decided to call the family GP and, after an initial examination, the GP has referred Jean for a full assessment at the local hospital suggesting a possible diagnosis of early stage Alzheimer's disease.
Assessment
This is a critical point in Jean and Harry's lives.
Consistency and continuity of family support networks are important beneficial factors in reducing carer burden. Distancing and loss of family support and the presence of social conflict are important predictors of burden. (Harvey, 1998) The continuity of social support networks may have been undermined by retirement, the move to the Lake District and Jean's recent unwillingness to socialise.Advice about coping, especially from other carers, can be particularly beneficial in supporting informal care arrangements. Harvey (1998) found that carers using escape and avoidance strategies, anger and denial coped less well than those actively seeking information, social support and problem focused support. Internet and email support would enable Harry and Jean to access a wide range of materials that could be helpful.
Jean's deteriorating cognitive skills are problematic for her but they may also cause stress for Harry at this stage. But the relationship between cognitive impairment and caregiver burden is not straightforward. A non-linear relationship between cognitive deterioration and carer burden has been suggested with the greatest burden at the point of seeking outside help and a reducing burden following this point. As the primary carer Harry is likely to be most distressed by what he perceives to be rapid changes in Jean's condition. (Harvey, 1998) Effective and efficient support is essential at this early stage to help Jean and Harry cope as well as possible. Jean still retains a reasonable degree of independence although her memory problems have made her less willing to socialise. Jean's condition is still in the early stages of Alzheimer's and residential care at this point would be inappropriate. The additional support available from assistive technologies and telematics could be important in underpinning a stable care arrangement. An additional and important benefit of using assistive technologies is the control that they allow people with dementia and their carers to retain over many aspects of their lives.
Jean might benefit from using computer based memory and language software to help her find ways of coping with her deteriorating memory. (Petheram, 1998) An electronic diary or scheduler may be valuable to helping remind her about day to day appointments and events. Access to information on memory loss and Alzheimer's support via the Internet will help broaden her social and cognitive world. Jean may feel more comfortable communicating by email with friends and relatives when she can take time and be helped to read and write messages.
Meeting Harry's needs is likely to become more important in the near future as he begins to take a more critical role in Jean's care. He will need support from other carers and advice about technical aspects of care. Much of this can be made available via the Internet. (CANDID, 1998) The advantage over verbal advice is that it can be stored and reviewed when necessary. The range of information is more varied and easier to search than traditional leaflets. The Internet and email can be accessed at any time of the day or night and email support groups are not constrained by travelling time or costs. Video conferencing could also be used to provide access to carer support meetings.
Assistive Technologies: Manufacturers and Suppliers
|
Company |
Address |
City |
County |
Postcode |
Country |
Phone |
Product |
|
Abal Vision |
15A Rodbourne Road, Rodbourne |
Swindon |
Wiltshire |
SN2 2AG |
UK |
01793 497591 |
CCTV Intercom systems |
|
Alpstar Electronics |
32 Plymyard Ave. |
Bromborough |
Wirral |
L62 6BN |
UK |
0151 327 2301 |
Call and Paging systems |
|
Answermaid International |
Unit 7 Holbrook Park Estate, Holbrook lane |
Coventry |
West midlands |
CV6 4AB |
UK |
01202 664644 |
CCTV intercom systems |
|
Aremco |
Grove House |
Lenham |
Kent |
ME17 2PX |
UK |
01622 858502 |
alarm systems |
|
British Telecom |
81 Newgate St |
London |
|
EC1A 7AJ |
UK |
0800 800 150 |
range of communication aids and community alarms |
|
Cambridge Adaptive Communication |
The Mount, Toft |
Cambridge |
Cambridge |
CB3 7RL |
UK |
01223 264244 |
Communication Software and Hardware |
|
Cass Electronics |
Delta Way, Thorpe Ind. Est. |
Egham |
Surrey |
TW20 8RX |
UK |
01932 577700 |
Hypothermia alarms |
|
Communication Care |
Communication House, 39 Invincible Rd. |
Farnborough |
Hants |
GU14 7QU |
UK |
01252 376746 |
Communication and call systems |
|
Easiaids |
5 Woodcote Park Ave |
Purley |
Surrey |
CR8 3NH |
UK |
0181 763 0203 |
Wandering Alarms |
|
Edinvar Housing Association |
Wellgate House, 200 Cowgate |
Edinburgh |
|
EH1 1NQ |
UK |
0131 225 2299 |
Demonstration site for assistive technology |
|
Frequency Precision |
Shorts Farm, Northlew |
Okehampton |
Devon |
EX20 3NR |
UK |
01837 810590 |
Monitoring systems |
|
Home Technologies |
Leathley lane |
Leathley |
North Yorkshire |
LS21 2JX |
UK |
01532 842900 |
Smart Home Technologies |
|
JFC Trading |
Milton Green Farm, Chapel Lane, Milton Green |
Chester |
Cheshire |
CH3 9EE |
UK |
01829 70835 |
radio frequency alarms |
|
Learning Fundamentals |
1130 Grove St., Suite 300 |
San Luis Obispo |
California |
CA 93401 |
USA |
800 777 3166 |
Language and memory software |
|
Patron Communications |
92 Hemmings Road, Washford Ind. est. |
Redditch |
Worcs. |
B98 0AU |
UK |
01527 525482 |
call systems |
|
Promedics |
Clarendon Road |
Blackburn |
Lancashire |
BB1 9TA |
UK |
01254 57700 |
Drug Dosage Systems |
|
QRO systems |
Valley View, Hadleigh Road |
Ipswich |
Suffolk |
IP2 0BT |
UK |
01473 212218 |
Smart Home Technologies |
|
Ridley Electronics |
66A Capworth Street |
Leyton |
London |
E10 7HA |
UK |
0181 558 7112 |
Switches, sensors and remote control products |
|
Scope Marketing |
Unit A, The scope Complex, Wills Rd. Totnes Ind. Est. |
Totnes |
Devon |
TQ9 5XN |
UK |
01803 864569 |
radio transmitter call/ paging systems |
|
Sensorcare Systems |
Kirk Hammerton Hall |
York |
North Yorkshire |
YO5 8DA |
UK |
01423 331298 |
fall sensors |
|
Sparks Fire Protection |
Cornubia, Groeswen Lane, Margam |
Port Talbot |
West Glamorgan |
SA13 2LA |
UK |
01639 885837 |
Alarm Systems |
|
SurgiChem |
SurgiChem House, Milton Court, Horsfield way, Bredbury park Ind. Est. |
Bredbury, Stockport |
Cheshire |
SK6 2TD |
UK |
0161 406 8710 |
medication dosage systems |
|
TFC |
Thornleigh House, 5 Park Lane |
Barnstaple |
Devon |
EX32 9AJ |
UK |
01271 327207 |
Pressure mat systems |
|
Tunstall Telecom |
Whitley Lodge |
Whitley Bridge |
South Yorkshire |
DN14 0HR |
UK |
01977 661234 |
AutoDial alarm systems |
|
UK Monitoring |
137 Grattan Road |
Bradford |
West Yorkshire |
BD1 2HS |
UK |
01274 394521 |
AutoDial alarms |
|
Universal aids |
8-14 wellington rd South |
Stockport |
Cheshire |
SK4 1AA |
UK |
0161 480 9228 |
Communication aids |
|
Universal aids |
8-14 Wellington rd South |
Stockport |
|
|
|
|
|
|
W&W Medsystems |
Unit 1 Crosland Road Ind. Est. Netherton |
Huddersfield |
West Yorkshire |
HD4 7DJ |
UK |
01484 667822 |
Controlled/monitored drug dosage systems |