Appendix Documents

A Case Scenario

The following case scenario is used to illustrate some common issues in dementia care and to suggest ways in which the main findings of this study might be applied to support people with dementia and their carers.

Jean and Harry

Jean (61) is a retired primary school teacher who lives with her husband. Harry (67). Jean and Harry both enjoy walking. Jean likes to read and paint watercolour landscapes Harry, a retired solicitor, is also a keen walker. Not long after moving to the Lake District Jean began to have problems remembering things like names and telephone numbers. She had difficulty remembering where she had left things and was constantly forgetting her keys. At first, Harry and Jean put the memory problems down to ageing and Jean's tendency to be 'scatty' and disorganised. Recently though Jean has had more difficulty reading and she has become more withdrawn. She had always been very sociable and had many friends but now seems to be losing interest in socialising. Harry complains that she is always making excuses whenever they are invited out. Jean has become much quieter often seems to lose track of conversations. After a recent outing Jean became very distressed when she could not find her way out of the local supermarket. Harry decided to call the family GP and, after an initial examination, the GP has referred Jean for a full assessment at the local hospital suggesting a possible diagnosis of early stage Alzheimer's disease.

Assessment

This is a critical point in Jean and Harry's lives. Consistency and continuity of family support networks are important beneficial factors in reducing carer burden. Distancing and loss of family support and the presence of social conflict are important predictors of burden. (Harvey, 1998) The continuity of social support networks may have been undermined by retirement, the move to the Lake District and Jean's recent unwillingness to socialise.

Advice about coping, especially from other carers, can be particularly beneficial in supporting informal care arrangements. Harvey (1998) found that carers using escape and avoidance strategies, anger and denial coped less well than those actively seeking information, social support and problem focused support. Internet and email support would enable Harry and Jean to access a wide range of materials that could be helpful.

Jean's deteriorating cognitive skills are problematic for her but they may also cause stress for Harry at this stage. But the relationship between cognitive impairment and caregiver burden is not straightforward. A non-linear relationship between cognitive deterioration and carer burden has been suggested with the greatest burden at the point of seeking outside help and a reducing burden following this point. As the primary carer Harry is likely to be most distressed by what he perceives to be rapid changes in Jean's condition. (Harvey, 1998) Effective and efficient support is essential at this early stage to help Jean and Harry cope as well as possible. Jean still retains a reasonable degree of independence although her memory problems have made her less willing to socialise. Jean's condition is still in the early stages of Alzheimer's and residential care at this point would be inappropriate. The additional support available from assistive technologies and telematics could be important in underpinning a stable care arrangement. An additional and important benefit of using assistive technologies is the control that they allow people with dementia and their carers to retain over many aspects of their lives.

Jean might benefit from using computer based memory and language software to help her find ways of coping with her deteriorating memory. (Petheram, 1998) An electronic diary or scheduler may be valuable to helping remind her about day to day appointments and events. Access to information on memory loss and Alzheimer's support via the Internet will help broaden her social and cognitive world. Jean may feel more comfortable communicating by email with friends and relatives when she can take time and be helped to read and write messages.

Meeting Harry's needs is likely to become more important in the near future as he begins to take a more critical role in Jean's care. He will need support from other carers and advice about technical aspects of care. Much of this can be made available via the Internet. (CANDID, 1998) The advantage over verbal advice is that it can be stored and reviewed when necessary. The range of information is more varied and easier to search than traditional leaflets. The Internet and email can be accessed at any time of the day or night and email support groups are not constrained by travelling time or costs. Video conferencing could also be used to provide access to carer support meetings.

 

Assistive Technologies: Manufacturers and Suppliers

Company

Address

City

County

Postcode

Country

Phone

Product

Abal Vision

15A Rodbourne Road, Rodbourne

Swindon

Wiltshire

SN2 2AG

UK

01793 497591

CCTV Intercom systems

Alpstar Electronics

32 Plymyard Ave.

Bromborough

Wirral

L62 6BN

UK

0151 327 2301

Call and Paging systems

Answermaid International

Unit 7 Holbrook Park Estate, Holbrook lane

Coventry

West midlands

CV6 4AB

UK

01202 664644

CCTV intercom systems

Aremco

Grove House

Lenham

Kent

ME17 2PX

UK

01622 858502

alarm systems

British Telecom

81 Newgate St

London

 

EC1A 7AJ

UK

0800 800 150

range of communication aids and community alarms

Cambridge Adaptive Communication

The Mount, Toft

Cambridge

Cambridge

CB3 7RL

UK

01223 264244

Communication Software and Hardware

Cass Electronics

Delta Way, Thorpe Ind. Est.

Egham

Surrey

TW20 8RX

UK

01932 577700

Hypothermia alarms

Communication Care

Communication House, 39 Invincible Rd.

Farnborough

Hants

GU14 7QU

UK

01252 376746

Communication and call systems

Easiaids

5 Woodcote Park Ave

Purley

Surrey

CR8 3NH

UK

0181 763 0203

Wandering Alarms

Edinvar Housing Association

Wellgate House, 200 Cowgate

Edinburgh

 

EH1 1NQ

UK

0131 225 2299

Demonstration site for assistive technology

Frequency Precision

Shorts Farm, Northlew

Okehampton

Devon

EX20 3NR

UK

01837 810590

Monitoring systems

Home Technologies

Leathley lane

Leathley

North Yorkshire

LS21 2JX

UK

01532 842900

Smart Home Technologies

JFC Trading

Milton Green Farm, Chapel Lane, Milton Green

Chester

Cheshire

CH3 9EE

UK

01829 70835

radio frequency alarms

Learning Fundamentals

1130 Grove St., Suite 300

San Luis Obispo

California

CA 93401

USA

800 777 3166

Language and memory software

Patron Communications

92 Hemmings Road, Washford Ind. est.

Redditch

Worcs.

B98 0AU

UK

01527 525482

call systems

Promedics

Clarendon Road

Blackburn

Lancashire

BB1 9TA

UK

01254 57700

Drug Dosage Systems

QRO systems

Valley View, Hadleigh Road

Ipswich

Suffolk

IP2 0BT

UK

01473 212218

Smart Home Technologies

Ridley Electronics

66A Capworth Street

Leyton

London

E10 7HA

UK

0181 558 7112

Switches, sensors and remote control products

Scope Marketing

Unit A, The scope Complex, Wills Rd. Totnes Ind. Est.

Totnes

Devon

TQ9 5XN

UK

01803 864569

radio transmitter call/ paging systems

Sensorcare Systems

Kirk Hammerton Hall

York

North Yorkshire

YO5 8DA

UK

01423 331298

fall sensors

Sparks Fire Protection

Cornubia, Groeswen Lane, Margam

Port Talbot

West Glamorgan

SA13 2LA

UK

01639 885837

Alarm Systems

SurgiChem

SurgiChem House, Milton Court, Horsfield way, Bredbury park Ind. Est.

Bredbury, Stockport

Cheshire

SK6 2TD

UK

0161 406 8710

medication dosage systems

TFC

Thornleigh House, 5 Park Lane

Barnstaple

Devon

EX32 9AJ

UK

01271 327207

Pressure mat systems

Tunstall Telecom

Whitley Lodge

Whitley Bridge

South Yorkshire

DN14 0HR

UK

01977 661234

AutoDial alarm systems

UK Monitoring

137 Grattan Road

Bradford

West Yorkshire

BD1 2HS

UK

01274 394521

AutoDial alarms

Universal aids

8-14 wellington rd South

Stockport

Cheshire

SK4 1AA

UK

0161 480 9228

Communication aids

Universal aids

8-14 Wellington rd South

Stockport

 

 

 

 

 

W&W Medsystems

Unit 1 Crosland Road Ind. Est. Netherton

Huddersfield

West Yorkshire

HD4 7DJ

UK

01484 667822

Controlled/monitored drug dosage systems